First are the pictures from Torah's EGD
"Esophagogastrodudenoscopy"
scope that was done on the 21st of December.
"Esophagogastrodudenoscopy"
scope that was done on the 21st of December.
These first 3 pictures are the Duodenum (upper intestine)
If you look at the 2nd and 3rd pictures - there is a white spot,
that is the healing ulcer that we suspect has been bleeding for the last 4-6 months.
All of the dark spots are the left over blood that was not flushed out of her stomach when we arrived at the ER at TCH (it took a full liter just to get the fluid to run mostly clear)
These three pictures show part of her stomach which looked normal and healthy.
The 3rd picture is the inside of the Mic-key button that we feed her through - it is just a ballon full of water.
So, pretty much they did find the ulcer that was healing - but they had no luck finding anything that would have caused her to bleed so much on the 17th to make her anemic and have to get 2 pints of blood. The doctors told me that she was probalby just bleeding real slow from the ulcer for the past few months and then whatever caused her to bleed after her MRI pushed her over the edge. We are suppose to go back in a month for a follow-up with the GI clinic at TCH. Other than that - now I just know what to look for and if I ever find the dark brown "coffee ground" substance in her stomach again - I will know that it means blood and that we need to go back to see if she has more ulcers.
Out of all that drama, I did get a copy of Torah's MRI report from the ER doctor. The Radiologist still could not find the Corpus callosum (this is part of the brain that does not ever grow after birth - so she will never have it). They did note a increase in ventriculomegaly with associated periventricular white matter loss.
TRANSLATION:
My guess is that the four ventricals in Torah's brain that have been enlarged (ventriculomegaly) since before birth have grown in size and is making the "white matter" smaller. I have not talked to a doctor to get their translation on this and if any one knows better - feel free to correct me.
Other areas that they reported on her MRI:
~ Pituitary gland is "unremarkable"
~ Optic nerves appear symmetric and within normal limits
~ Left cerebellar hemisphere remains slightly smaller in size compared to the right
Other than all the above - all her test and appointments went well. If you have any questions, feel free to ask. Thanks again for all the prayers and support for Torah.
Out of all that drama, I did get a copy of Torah's MRI report from the ER doctor. The Radiologist still could not find the Corpus callosum (this is part of the brain that does not ever grow after birth - so she will never have it). They did note a increase in ventriculomegaly with associated periventricular white matter loss.
TRANSLATION:
My guess is that the four ventricals in Torah's brain that have been enlarged (ventriculomegaly) since before birth have grown in size and is making the "white matter" smaller. I have not talked to a doctor to get their translation on this and if any one knows better - feel free to correct me.
Other areas that they reported on her MRI:
~ Pituitary gland is "unremarkable"
~ Optic nerves appear symmetric and within normal limits
~ Left cerebellar hemisphere remains slightly smaller in size compared to the right
Other than all the above - all her test and appointments went well. If you have any questions, feel free to ask. Thanks again for all the prayers and support for Torah.
Thanks for the update; gives me a better idea how to pray. I wish that results were easier to understand!! How are you holding up? Been thinking of you, especially the last couple of days!! HUGS!!
ReplyDeleteChristy