I know I have not posted anything for awhile. I feel like my mind is going in so many different directions and it is very possible that it just left for a very long needed vacation. LOL
Torah is really doing well over all. We are planning a trip down to Denver here in a few weeks for her appointments. She has not had anything big happen since her last seizure in December, but she always seems to be a ticking time bomb (so I will knock on wood!). We go back to her ENT on the 31st to see what her ears are doing.
A lot of our time and concentration has been going toward her schooling and what she will or will not be doing next year. The question has come up weather Torah should go to "Pre-school" at the development center next year. Currently she is only going to school for 1 hour twice a week. I wished that she was there for the full time, but since she does not eat or brush her teeth - the group either dose not think that she needs to be there (or they do not have the staff or time to work with her). I only want her there because after her last trip to Denver we were told to start working with smells and also oral care . . . so would not a great time to work on that stuff be when the other kids are eating and brushing their teeth????
Now for this next coming school year - it would be for the morning hours 4 days a week. I would really like this to be a transition time for Torah to get ready for Kindergarten over at the Primary School in 2012. I have been told that since Torah does not participate like the other kids in her class and because she might miss some school, they would like to keep the slot open for a child that could use it more. Funny thing is - I was told once that Torah deserves schooling too and Legally the state has to provide for her what she needs. I just do not understand what the problem is. If a meeting is not arranged soon to meet with all of Torah's therapist (who have been AWESOME through all of this), and other caregivers - I will defiantly get one scheduled so that we can know for sure what this coming school year will be like. I just never thought I would have to worry about the Development Center and the care that Torah was getting there.
Sorry for letting it all out, and I am hoping to have a better post when we get all of this resolved.
