Thanksgiving

Hope you all had a wonderful Thanksgiving this year! We did!!! Even though we were not able to share it with all our friends a family in Kansas, we were able to share the day with our new friends here in Wyoming.

Torah has been doing a lot better. No new seizures that I have seen since the last update. Getting ready for all her appointments here this week down in Denver at The Childrens Hospital. Will see how our new appointments go with the Oral Feeding Clinic and also the Dentist (for the first time). I had tried to schedule Torah for a dentist in Cheyenne, but every time we were scheduled to go (which was a two day visit) we always had to go down to TCH for appointments. So, I figured that maybe we should just schedule her with the dentist at TCH and that way we can fit it all in while we are there.

My friend April that lives about an hour North will be keeping Tyler since Bob is working nights and I know from experiance that taking all three kids to two days worth of doctor appointments is never a good thing . . . So, THANK YOU APRIL!!!! It means the world!!

Also getting ready for a trip back to Kansas at which time we will be celebrating Tyler's 1st birthday (which is this Friday already!!). Looking forward to seeing all our family and friends! Hope everyone had a wonderful December and will post again when I can get back to the computer!

Hopefully nothing!

I just posted on FB that Torah has been having a lot of small seizures lately (staring Friday). Saturday she went into one of her spells where she sleeps all day for 3-4 days and I thought that she was going to come out of it today, but even last night I watched her in her bed zone out and it took me making a lot of commotion to get her to snap out of it. Also, today during her class time, one of her therapist told me that she zone out (what we call a staring spell) and it took awhile to get her to come back from that as well.
Just pray that we can make it a few more weeks. Her appointments with her doctors in Denver are on the 1st and 2nd of December and even though all the doctors really can do is increase her meds, maybe they can still see her and how she is when she has these mysterious seizures. Really also wanting to make it through the holidays!
We use to only go to TCH every 6 months, but we starting to notice that Torah would have a big seizure anywhere from a month to a few weeks before we went down. So, Bob and I asked the doctors if we should maybe be coming every 4 months - and they agreed. We were at TCH in August for a surgery follow-up and other appts (including neuro), but I am starting to wonder if we will make it to our next 4 mth appt here in just a weeks time. I guess we will soon find out!
Will try to keep this updated on how she is doing!
Thanks for all the prayers and support!

This is Torah's first official piece of art!!
It was suppose to be a thanksgiving turkey, but I am calling it her butterfly!
They took her shoe print and put it over a coffee filter
and her therapist Jess helped her paint with a brush and droplet.
She had so much fun and got paint everywhere!!

Where has the year gone!!

Wow! I can not believe that it is already November!! Thanksgiving is just around the corner and so is Tyler's first birthday and then Christmas after that . . .

I am sorry that I have not been updating the blog much, I feel like life has been a lot of routine things with out a lot of new (so I don't think about updating). I will try to do better here after! :)

Torah standing up!!

Torah has recovered so well from her hip surgery and so many things have changed with her since then. She is starting to get a since of balance and today I noticed for the first time that she was sitting up on her own with only my hand on her back. YAY!!!! She still has a hard time keeping her head up for a long amount of time and I am not sure if that will ever change unless her low muscle tone improves. She also tries to pull herself up off the floor like she wants to sit up, but just does not have the strength to go all the way . . . but she sure tries! She is still not eating anything by mouth or really letting me brush her teeth, but we are going to Denver here in a few weeks to meet with the Oral Feeding clinic and also the dental clinic to see what and if anything can be done to help her.

I still think that she has small seizures almost on a daily basis but they never amount to anything except a build up of saliva. I was watching her while she slept a few nights ago and she just kept swallowing over and over again. She has not had what we call a "reflux" spell (which is probably a seizure) for awhile where she sleeps for 3-4 days . . . which is good news!

We are looking forward to our trip back to Kansas in December at which time we will be also celebrating Ty's 1st birthday (I cant believe my last baby is growing up so fast!!)

Tyler, Torah and Jace on Halloween