Hoping for a good 2010

Hoping not to jinx Torah any, but it is almost 2010 and things are going well. She is still having a lot of refluxing and sleeping spells that last for about 4 days. Not sure why or what is causing it since nothing in our routine has changed. She does not seem to be bleeding in her stomach from any ulcers and she may seem to have a slight sinus infection, but nothing but a snotty nose.

We do not go back to TCH in Denver for any scheduled appts till April (seems so far away right now). Really wanting some answers, but also not expecting too much either. They will be doing another MRI of her brain at that time and also some more genetics testing to look for any defects in her DNA. Still waiting for Medicaid to pay for her glasses that we ordered last June and also waiting for our primary insurance to deny some claims so that we can get the Wyoming Medical Waiver to pay for them (things like a walker, therapy equipment, support chairs, and hopefully a new wheelchair).
Welcoming a new baby into the house is keeping me very busy right now. Not sure how I am going to handle everything once Christmas vacation is over and all of her therapy sessions start back up. Once she turns 3 in February - she will be put into a classroom like setting (with out me around - that will be hard and different). Also when she turns 3 - insurance will start to pay for her diapers (praise God since I just got one out of diapers (Jace) and another one into diapers (Tyler).)
Keep praying that she stays healthy and out of TCH for now. If she was to be shipped down to Denver for some emergency - Tyler would be coming with me since I am breastfeeding and I am not sure how that would exactly work out. I know that God has everything under His control and He will not give me anymore than I can handle, but still some days can be very overwelming and stressful.

Wishing everyone a HAPPY NEW YEAR and may God bless you and your family!

Too much in little time!

Wow, I can not believe that 2 months have gone by since I have updated!!

Torah has been doing good besides a few relfux episodes. Im still not sure what brings them on, but she has had one about every weekend since our new little addition to the family has arrived. I think that she has also had a growing spurt where not only did she get longer, but her hands and feet look like they grew as well (guess she will be getting clothes for Christmas this year). We have recently just changed Case managers for her as well with the Wyoming medical waiver program. Bonnie has already been a blessing in just the few short weeks that we have had her. We also looking a getting some new equipment for Torah through the waiver soon too, will try to update with pictures when that happens. We did just go back to Denver on the 15th to pick up Torah's TLSO back brace. As long as she has a way to stay cool - she does not mind wearing it, but while she is in the house - she tends to sweat a lot in it and gets pretty cranky after about 15 minutes. The brace does help her sit up a lot better and gives her better stability. As soon as I can find my camera or get a new one - I will try to post some pictures.

There is some BIG and exciting news!! On December 3rd we welcomed Tyler David Hull into our family at 12:24pm by c-section (scheduled). He weighed 8lbs 12 oz and was 20.5 inches long. All the doctors and nurses were just amazed on how big his head was and the doctor actually had to use a vaccum to pull him out of me. He is a very healthy boy that loves to be cuddled and held. It is a good thing that I have had family around to help me with Torah since they have also helped hold Tyler as well when I have to get things done. Thanks so much to my Dad and sister, they were here in Wyoming for the birth of Tyler. When they had to leave and go back home, Bob's aunt Becky and uncle Jon came up for a week to help while Bob was working days. Now Bob's parents are here till Christmas and Jace is having a blast!!

Tyler David - 17 days old