Thursday, March 26, 2009

Too much to worry about - but we are making it through it all some how!

I am sitting here tonight watching Torah sleep. She has been such a trooper lately and has been so happy through it all. As far as I know - she got her first ear infection on Sunday and we are on day 5 with no end in sight yet. I have never seen so much stuff come out of a ear before let alone different stuff everyday (lol). I only had to give her Tylenol one night - so it does not seem to bother her any and she even laughs at me when I try to clean her ear out. Who knew?? Another funny part about it all is that Monday morning we were in a blizzard warning and were in no way shape or form going to get to Casper to see her doctor. I called them on the phone and let them know what was going on - a few hours later, my phone rang and the doctor called in a RX to our pharmacy (no questions asked). Then you hear on the TV " This is the Douglas Police Department - we are asking that there be NO unnecessary travel out on the city streets". Luckily I have 4 wheel drive and made it to the store and back home safely (but you could not see more than a block because of all the blowing snow).
Terry with Untamed Spirits came by the house last night to drop off the raffle tickets for the benefit that they are doing for Torah. If you would a ticket ( $1 = 1 ticket / $5 = 6 tickets) email me at kelle.hull@gmail.com - The poker run will be June 13th.
Upcoming for Torah in the next few weeks are a couple of appointments. We are going to be heading to Lander, WY to meet with the Wyoming First Step Diagnostic Clinic. While we are there, she will see the Wyoming Educational intervention Assessment Team consisting of a Vision specialist, Physical Therapist, Speech Therapist, Occupational Therapist, and a Hearing Impaired Specialist. Then later we will also see a Audiologist, Pediatrician and a Low Vision Specialist. So it will be a full day of doctors and specialist (just like Denver). The week after the appointment in Lander I (as of now) I will be heading back to TCH in Denver to see a few doctors. I am trying to get it pushed off for another month so that we can hopefully try and get all of her doctors in in the two days that we plan to be there. If we go in a few weeks - we will only be seeing 3 out of 6 and we would not plan on being back till the fall for our regular visits. So once I get a hold of our SCC gal that sets up all our appointments - we will see what can be done.

Saturday, March 21, 2009

Wishing for wammer weather!!

It is March (actually March is almost over already) and we made it to Missouri, Kansas and back to Wyoming safe and sound. Although we did pick up some cold bugs and Bob got his had bit by his brother's dog. Funny how a guy can go slaughter a deer (or other wild game) but the sight of his own blood makes him almost pass out (I had to laugh at him for that one).
We met with Torah's new PCP before our trip. It was just a well child visit with some lab work (that must have been normal since I did not get a call back from the office). We also saw her ENT doctor to see how the tubes in her ears are doing. The tube in the left ear had finally slipped out and the doctor said that the right one would come out any day. He also told me that it looked like the left ear was filling back up with fluid. I told him about all her sinus infections this year alone and he wants to wait till warmer weather (June) before making any big decisions.
We go to Lander, Wyoming on the 3rd of April to meet with a group of specialist that have clinics to see kids like Torah. It is all being paid for by the State. I just hope that it will be beneficial and that we can learn something new or maybe they might have some new ideas on how to help her.
BAD NEWS: I just got a letter from our medical insurance telling us that Torah's pool therapy will no longer be covered because they see it as maintenance. So, until I get that straitened out - no more swimming for Torah unless I can come up with the 65 bucks for each visit. Oh, and they are not paying for the past few months either - so that is another 600 dollars to pay out as well. I have a feeling that I am going to be sitting on the phone with our insurance company to see how we can get at least the past visits paid for. We had such good luck with our insurance when we first started - and now it is just going down hill fast. I am hoping that their is one person that I can deal with - but you never know with stuff like this.
Torah is growing and trying her hardest to keep up with her brother Jace. She is about 37.5 inches long and is 32 pounds. I am getting to where I can not pick her up very well when she is on the floor - but I am not sure how to resolve that issue either. At some point everyday I need to pick her up at least 5-10 times (if not more). I guess I should make me a monthly visit to see a chiropractor (yeah right - insurance would love that too).
Not too much else to report for now . . . check back soon!!

Daddy's little girl

Daddy's little girl

Torah with Mommy!

Torah with Mommy!