Torah entered into our world in February 2007. Even though she was 6 weeks early, she was a fighter and pulled through with out any major problems in the NICU. Her doctors have yet to figure out her diagnosis, but we keep trying with new test and ideas. She is such a trooper and a very happy little girl when she is healthy, but she also keeps us all on our toes! We love her so much and could not imagine life with out ever having her!!
Followers
Diagnosis and Symptoms
CNS Dysgenesis (primary diagnosis)
34 weeks at birth
Agenesis of the Corpus Callosum (ACC)
Enlarged Brain Ventricles (No Hydrocephalus)
Abnormal Cerebellum
Scoliosis (40 degrees as of April 2011)
Low Muscle Tone & Hyperflexibility
Developmental Delays
Speech and Oral Delays
Seizures
Reflux
G-Button (January 2008)
Nissen Fundo (January 2008)
Ear Tubes (December 2007)
Tubes & Adenoidectomy (Sept 2009)
Varus Derotation Osteotomy (July 2010)
VNS Therapy Device Implant - January 2013
Hospital Visits
Douglas to TCH - Pneumonia & Staff infection - Feb 19 - ?, 2014
Casper, WY - WMC - Seizure - Jan 17 &18th, 2014
Colby, KS to TCH - Seizure - June 26, 2013
WesleyMC - Seizure - Dec 26-29, 2012
TCH - Seizure - Aug 20-23, 2012
TCH - Seizure - December 9-11, 2010
TCH - Sleep Study - May 20-23, 2010
Children's Mercy - Seizure - May 11-15, 2010
Laramie/TCH - Fever & Seizures - February 19-22, 2010