So it has been quite awhile since my last post
and there is no real good excuse besides me being a mom ... Sorry!!
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| First Day of Kindergarten |
Torah has had a lot happen. She has started Kindergarten and loves it. Her teacher's name is Mrs. Soske and her para is Kayla. Everyone seems to know Torah now and loves to see her smile. Torah did have a seizure right before school started and we again was shipped to TCH in Denver. Her seizure meds have gone up in dosage and seem to really have no effect on her or her seizures, but we hoped they were under control.
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| Our New Home! |
We have move to a new home and have settled in since June. We went from a 3 bedroom double wide trailer house to a 5+ bedroom home with over 2600 sq ft of room. Going to be working on remodeling the upstairs bathroom for Torah in the next year, but other than Bob building a ramp in the garage there was not much to change to the house.
Feel free to come see us anytime, we always like to have our friends and family as guest!!
Torah was able to go to the Shriners Hospital in Salt Lake City. We saw an orthopedic doctor there. They also set her up with a new back brace, AFO's (leg braces) and also a new wheelchair.
We made it home to Kansas for Christmas and survived all our family gatherings. It was so good to see everyone again and spend time with them! On the 26th of December, Torah's brain decided to spice up the holidays with a "status seizure" and we ended up calling 911 to come and get her from my dad's house. I was able to see some old friends and co-workers while we were in the ER, but she was soon shipped out to Wichita to Wesley Medical Center to the PICU and under the same neuro doctor that she saw when she was born. It was good in a way, because this doctor brought up some other ideas of ways to control Torah's seizures since the 3 medications did not seem to be doing the job. So after talking with Torah's neurologist here in Wyoming, we will be getting her set up with VNS Therapy. The procedure will be January 22nd. We are hoping that this will help control her seizures better - it is kind of like a pacemaker for the brain. Maybe after some time we will be able to stop or lower some of the doses of the medication she is on.
Will try to update again later to let you know how she is doing with the device. If anything, send me a note and remind me!! LOL
