I went to a Parent Training course tonight put on by a couple that has a child with brain injuries. They are with a group called Renewed Hope Foundation and are currently working with a Group called ABR (Advanced Biomechanical Rehabilitation). It has helped their 8 year old son and I think might help Torah in the long run.
Here is the address for the ABR site :
http://www.abrtherapy.com/
If anyone wants to check it out and let me know what you think of it, I could use feed back.
Currently they are based out of Montreal Canada. If you work with ABR you are required to go to the Main site once a year and then one of their other sites (New York, Florida, California, Mexico) 1 to 3 times a year. The Renewed Hope Foundation is trying to get them to set up a site in Casper, Wyoming. All they need is 15 families to say that they would be willing to work with the ABR. The government has even said that if 15+ families sign up - they would be willing to fund some of the expenses that come with working with ABR (traveling, supplies, etc.)
I am going to do my own research - but I think it could help her along with with a lot of other info and helpful tips I picked up tonight. I am going to have my work cut out for me if I do all that they suggest I do to help Torah. I do plan on staying in touch with this couple and seeing how they can help me do more at home to help Torah.
Let me know any thoughts that you might have, I can use any and all support.
Monday, September 22, 2008
Wednesday, September 17, 2008
Ready for Fall
Well, we have made it though the summer with no medial problems. Still having her sleeping spells, she is even in day 4 of one now. We are increasing her therapy to seeing Bonnie for OT and Pool every week, Chuck for PT twice a month, Janet for OT at home twice a month, and Gail for basic therapy at home every week. I am going to be going to some meetings with other parents and organizations that help kids with multiple diagnosis. I am hoping to meet people to talk to and also more people that can give me information to help Torah as she grows. We went home to Kansas for Labor day weekend and was able to see a lot of our family and friends. I think that Christmas will be our next trip home and we look forward to that. I did measure the kids today and I can not believe how much they have grown. Jace is up to 42 inches and torah is 35 in. The last time that Torah was measured was back in July and she has grown 2 inches since then (talk about a growing spurt).
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Daddy's little girl
Torah with Mommy!




