Hoping not to jinx Torah any, but it is almost 2010 and things are going well. She is still having a lot of refluxing and sleeping spells that last for about 4 days. Not sure why or what is causing it since nothing in our routine has changed. She does not seem to be bleeding in her stomach from any ulcers and she may seem to have a slight sinus infection, but nothing but a snotty nose.
We do not go back to TCH in Denver for any scheduled appts till April (seems so far away right now). Really wanting some answers, but also not expecting too much either. They will be doing another MRI of her brain at that time and also some more genetics testing to look for any defects in her DNA. Still waiting for Medicaid to pay for her glasses that we ordered last June and also waiting for our primary insurance to deny some claims so that we can get the Wyoming Medical Waiver to pay for them (things like a walker, therapy equipment, support chairs, and hopefully a new wheelchair).
Welcoming a new baby into the house is keeping me very busy right now. Not sure how I am going to handle everything once Christmas vacation is over and all of her therapy sessions start back up. Once she turns 3 in February - she will be put into a classroom like setting (with out me around - that will be hard and different). Also when she turns 3 - insurance will start to pay for her diapers (praise God since I just got one out of diapers (Jace) and another one into diapers (Tyler).)
Keep praying that she stays healthy and out of TCH for now. If she was to be shipped down to Denver for some emergency - Tyler would be coming with me since I am breastfeeding and I am not sure how that would exactly work out. I know that God has everything under His control and He will not give me anymore than I can handle, but still some days can be very overwelming and stressful.
Welcoming a new baby into the house is keeping me very busy right now. Not sure how I am going to handle everything once Christmas vacation is over and all of her therapy sessions start back up. Once she turns 3 in February - she will be put into a classroom like setting (with out me around - that will be hard and different). Also when she turns 3 - insurance will start to pay for her diapers (praise God since I just got one out of diapers (Jace) and another one into diapers (Tyler).)
Keep praying that she stays healthy and out of TCH for now. If she was to be shipped down to Denver for some emergency - Tyler would be coming with me since I am breastfeeding and I am not sure how that would exactly work out. I know that God has everything under His control and He will not give me anymore than I can handle, but still some days can be very overwelming and stressful.
Wishing everyone a HAPPY NEW YEAR and may God bless you and your family!
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