I just posted on FB that Torah has been having a lot of small seizures lately (staring Friday). Saturday she went into one of her spells where she sleeps all day for 3-4 days and I thought that she was going to come out of it today, but even last night I watched her in her bed zone out and it took me making a lot of commotion to get her to snap out of it. Also, today during her class time, one of her therapist told me that she zone out (what we call a staring spell) and it took awhile to get her to come back from that as well.
Just pray that we can make it a few more weeks. Her appointments with her doctors in Denver are on the 1st and 2nd of December and even though all the doctors really can do is increase her meds, maybe they can still see her and how she is when she has these mysterious seizures. Really also wanting to make it through the holidays!
We use to only go to TCH every 6 months, but we starting to notice that Torah would have a big seizure anywhere from a month to a few weeks before we went down. So, Bob and I asked the doctors if we should maybe be coming every 4 months - and they agreed. We were at TCH in August for a surgery follow-up and other appts (including neuro), but I am starting to wonder if we will make it to our next 4 mth appt here in just a weeks time. I guess we will soon find out!
Will try to keep this updated on how she is doing!
Thanks for all the prayers and support!
Just pray that we can make it a few more weeks. Her appointments with her doctors in Denver are on the 1st and 2nd of December and even though all the doctors really can do is increase her meds, maybe they can still see her and how she is when she has these mysterious seizures. Really also wanting to make it through the holidays!
We use to only go to TCH every 6 months, but we starting to notice that Torah would have a big seizure anywhere from a month to a few weeks before we went down. So, Bob and I asked the doctors if we should maybe be coming every 4 months - and they agreed. We were at TCH in August for a surgery follow-up and other appts (including neuro), but I am starting to wonder if we will make it to our next 4 mth appt here in just a weeks time. I guess we will soon find out!
Will try to keep this updated on how she is doing!
Thanks for all the prayers and support!
No comments:
Post a Comment