Upcoming visit to TCH

Well, I was trying to schedule with the GI doctors and the Special Care doctors - a visit maybe sometime in mid February for us to take Torah back down for some follow-up care. I guess that the GI clinic was not happy with that and really do want us back down there "1 month" after being dismissed from her last inpatient stay at TCH. So, we will be heading back to TCH next friday (the 23rd).
Dr. B (one of the GI docs that we saw last month) called me today to talk about Torah's reflux and what has been going on since we last talked with him. I told him that her reflux has not improved since we have been home, and she is 'healthy' and should be not having problmes with her reflux (ecpescially since she is on 30 mg of prevacid daily). Sometimes I wonder if it could be the food that we are giving her since it is the only food that she has ever been on after the g-tube and fundo were done last January; but Dr. B wants to do a radiology study to check out the fundo to make sure that it is still holding first. I know that they are going to put barium into her stomach via her g-tube and see if she 'refluxes' it back up into her esophagus (sad to think that I am actually hoping that she is still having bad reflux that day).
Her reflux is just almost an everyday thing anymore - but it is still hard to watch her struggle with it so much. She is such a little trooper and always pulls through. Even right now as I am writing all this - she is struggling with the reflux. I just hope that they can figure out a way to get her past this part of her journey so that she can move on and get stronger and healthier.
So on Friday the 23rd - I will pack up myself and the kids and head back south for another adventure at TCH. Prayers are always welcome!!