Back from TCH

We made it to Denver and then back home again safely. The roads were not great (snow and ICE) and we saw several wrecks along the way, but that just helped remind me that I needed to take my time and drive as safe as I could. I did have a semi-truck pass me where the snow was really loose, and after he got around me I had to slow down and almost stop because it was a complete white out. Thank goodness that he was the only one!!!

Torah had an Upper GI done and the test went well. They saw that she did reflux up into her esophagus (past the fundo nissen), so we are just going to keep an eye on things and next time she struggles with the reflux - then mom will call the GI doctor and will see what he wants to change then.

 We also met with the Special Care doctor and we pretty much went over everything that has happened over the past year. She pulled up the MRI done last month and showed me the pictures. She told me that Torah's brain (white matter) has not grown or developed much over the past year and since there is no such thing as "empty space" in the brain, Torah's ventricles have grown and filled in the areas. If you were to look at the MRI picture - her ventricles are taking up most of the brain. Dr. E told me that a normal person's ventricles would be 1/3 the size of Torah's. Dr. E also told me that Torah's scoliosis is at a 27 degree curve and that it is not serious - but for her age and size, it would be good to get her into see a Orthopedic doctor next time we come down. So come April (which will be the time for all our routine visits) we will be seeing 7 different doctors (or clinics) over a two day period: Special Care, Rehab, Neurology, GI, Orthopedic, Optometrist, and maybe a Orthodontist. 

Hopefully Bob will be able to come with us and help out (it always makes it less stressful on me when he is there).