Things are looking better

The doctors extibated her and took away all breathing support since Torah was about to do it for them anyway. She did fine for about 15 min before she kept having apnea spells. After going out to eat and coming back - the doctors had decided to put her on a CPAP machine to help her get past the apnea spells . . . sad to say that it did not help much. Plus every time she yawned or coughed she would loose the seal around the mask and the machine would beep at us (constantly!). Bob and I talked to the resident and tried to tell him that we thought she was having small seizures (staring spells - plus her eyes were so dilated and did not respond fast), but he did not seem to think that seizures were the cause. Sometime around midnight the doctors did rounds and the head doctor checked her out while she had one of these spells that cause the apnea and decided to put her on a seizure medication to help stop them (if they were seizures) . . . sure enough the medication helped but only after her blood pressure dropped to 80 over 30. She did bounce back and had a pretty restful night. After shift change this morning - our nurse Amanda that we had yesterday too - was tired of Torah trying to take her CPAP mask off and had the Respiratory Therapist come in and disconnect her from the machine. She has done good since then with only a few time of her holding her breath and destating down in to the 80's.

Sounds like the Neurologist are going to come talk to us this morning and then get Torah moved up to their floor and out of the PICU maybe around noon today. Just praying that the doctors can keep an open mind and maybe help us with all of this new information. Thanks so much for all of the prayers . . .