Sleep Study at TCH

Tomorrow morning I will be dropping the boys off with a friend to watch and then taking off for Denver to admit Torah as an inpatient so that she can have a Sleep Study done with an EEG. I wish that while we were in KC at Childrens Mercy - they would have just done all of this, but for some reason it was not done and so we will be making yet another trip to Denver. I am not going to be able to meet up with her regular doctors on this "short notice" trip, but we are meeting with an understudy and he will get all the info to our normal doctor. They are doing the EEG to see if she is having any seizures while she sleeps and maybe that is what is causing her to destat while she sleeps. I do not what her to have a seizure, I also want the doctors to actually catch her having one when she does have an EEG done . . . it is all in God's hands what happens.
I did get her Special Care doctor to finally order us some oxygen to have at home in case she has a seizure. I am hoping that after this sleep study, the doctors will order her to be on the oxygen at night too. When ever she is an inpatient - when she sleeps - she will destat into the 80's and even sometimes into the 70's. I am just surprised that no doctor has ordered it for her before now.
I will post an update as soon as I hear the results. I am hoping that this is just an overnight visit and they don't find any reason to keep her longer than that.

In the next few weeks and up coming months, Torah has her first dentist appointment (which she will be fully sedated for) and also her surgery on her hips. I will also be complicating things - on June 2nd, I will be having the rod in my right tibia taken out (they actually wanted to do this on this upcoming friday, but I had to respectfully decline). Not sure of the recovery time, but the doctor did inform me that I will be sore for awhile . . . Oh, I cant wait!!! LOL