Rough and busy month

This year just seems to be flying by and I can not believe that it is already July. Torah has been very ornery lately and has kept us busy cleaning up after her. If she is not pulling out her mic-key button, she is opening the medication port and letting everything drain around her in the middle of the night. I am guessing that she is doing this because she might have a stomach ulcer and some pains to go along with it. Two days ago, she started to go into one of her sleeping spells, so I just kept her feeds low and also kept her on oxygen . . . now today, she seems better!!

I am trying to wait for our trip to Denver in September to arrange all of her dr appts at TCH, but that is also pushing the 4 months and their could be a possibility of a seizure before then, but I am going to do my best to try and catch the seizure and maybe use the "seizure action plan" the doctors gave me last time to see if it will hopefully work!

Bob's brother gets married this month, and we are so looking forward to welcoming Heather into our family.

After the wedding, my dad and sister will be coming up to see us for the week. So excited, and we have lots of fun things to do while they are here. It also sounds like, Bob's parents might be coming up the week after too . . . so we will be busy and it will be so good to see everyone.