As I mentioned in the previous post - I had thought that I saw some blood in her stomach contents before we left for our trip to Kansas over Easter weekend. I think that I was right because on Tuesday the 21st I saw it again and it was quite a bit (not fresh blood - but the "coffee ground" looking contents). I had hooked her g-tube up to vent her stomach (it is how we burp her - or get the air out of her stomach) and after quite a bit of air came out, all the water I had just given her was coming back up along with the "coffee grounds". So I got on the phone to call Torah's GI doctor at TCH to see what he wanted to do. He had told me to call him directly and not any other doctor - so assume my surprise when the nurse told me that we needed to call Torah's PCP and get her in to see him first. It is hard enough to get into see them and I was starting to get very frusterated. Thankfully, God was not wanting me to stress too much about all this - and the doctor's office told me that they could get her in the next morning. We already had a visit that morning to see Torah's ENT doctor and so her PCP doctor got her in 2 hours after (worked out really well). Wednesday morning we took off for Casper and the visit with the ENT doctor went well. They looked at her ears and agreed that she is not hearing out of her Left ear because it has filled back up with fluid, but her Right ear is fine and the tube is helping keep that ear clear. The doctor does not want Torah on any more antibiotics unless needed (so no 1 month of augmentin to help with the recurring sinus infections). The ENT doctor thinks that they might be taking her adnoids out the same time that they put tubes back in her ears. We go back in June for the doctor to make his final descision. After our ENT appt we went over to see her PCP and he also agreed about her not getting the antibiotics unless really needed. He thinks that the bleeding might be just be a come and go thing (which very possibly could be true). He ordered a blood test and I am guessing that no news is good news. So anytime I see the "coffee grounds" in her stomach contents I will call Torah's PCP and see if he wants to order another blood test.
She has been doing great the past week and has been really happy ( I love it when she is happy)!! Not much else is new. We are still working with our insurance company on the pool therapy, and I am still waiting to hear our final appointment times for when we take her back to TCH in June. The only appointments in May are for Bob and I, so hopfully Torah stays healthy and my stress level can come down before June.
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