Nothing new

Nothing new going on here with Torah or the rest of the family. I guess no news is good news.

We are still waiting to hear weather or not we can get her new reflux medication. The insurance company has pre-approved it, now we just need to wait and see if they will actually pay for it. So currently she is still using the Zantac and she continues to have problems with the gagging and retching, but I have figured out if I slowly feed her all through the day she does ok.

We are scheduled to head to The Children's Hospital in Denver in about 3 weeks. I am thinking that the appointments will turn out to be just routine check-ups, but in a way I am hoping that the doctors will find or discover something to help them figure out what is going on with her.

I have connected with so many new mom's of kids with ACC over Facebook. Knowing what some of their kids have gone through and overcome I am very positive that Torah will one day pull through all of this to where anyone that does not know her would never be able to tell that there is anything wrong.

She does get stronger everyday, but she is also becoming a 2 year old . . . meaning that she likes to throw crying fits when the therapist trying to work with her. If you try and make her do something that she does not want to do (like feel something with her hands - or put something in her mouth) she will let you know and pretty much cry the rest of the session. I am hoping that she will stop doing that soon, because the therapist feel so bad and dont want to work with her. As soon as the therapist leave the room or our house, Torah is back to her normal happy self until I try to work with her.