Finally an Update

I know that I am a little behind on getting this update onto this blog, but hey, I am finally able to sit down for more than 5 minutes to type it all out. We did make it to Denver last month for all of Torah's check-ups and other appointments. We started with the cardiologist and that appointment was just to make sure that Torah did not have a heart murmur or any other defect. Torah was given a clean bill of a healthy heart and we were told that we should never have to visit another cardiologist again (Good News). Then we went on to see the Rehab specialist (like a physical therapy doctor). She was very nice and did not have anything new for us - so that was a quick visit. The eye doctor was our next stop and I was very impressed with the staff and the resident doctor that saw us. They did not find anything wrong with her eyes, said she was a little far sided and had a small stigmatism - but that normal for small children her age. On Day number 2 - we started off seeing the Neurologist. They were impressed with how far Torah had come since January and said that it is normal to keep children on the anti-seizure medication for up to two years (so Torah will be taking the Keppra until she is at least 3 years old). They also did an x-ray of her spine to use as a baseline. They said that she show a significant dextroscoliotic curvature of the spine and they wanted an x-ray to compare things to down the road. Our last appointment was with our development doctor. We were hoping that she was going to have a syndrome or diagnosis for what Torah's condition is . . . but in all her research, she was not able to connect everything to one specific diagnosis. So as of now all that we can really call it is CNS (central nervous system) disgenisis - meaning abnormal growth of the brain. The doctor was happy with Torah's progress and other than trying to get Torah's constipation under control - we are just proceeding with everything just the same. We will be going back Thursday, July 17th for a EEG to make sure that Torah is not having any further seizure activity and then we will also go back to see the development doctor in September for a follow up appointment.

Other updates about Torah:
Height - 32 inches
Weight - 23 pounds (+/-)
Teeth - 2 (almost 4) on bottom and 5 on top
Able to hold up head pretty good
Likes to stand on her feet
Still has no balance - but is able to sit up with help
Rolls from back to stomach and can pick head up occasionally
The doctor said that she is not ready to be eating by mouth yet - but she does get to taste food

Oh, and we did make it to our new home in Douglas Wyoming. It is a 3 bedroom house - so everyone has there own room and we can still make it possible to keep visitors at the house too. Our next trip back to Kansas might not be till December - but feel free to call or e-mail anytime.