I have been thinking of a different way to get info out to everyone about Torah and what is happening to her. I do alot on my facebook page - but I realize that not everyone is on facebook. So this is my way of trying to include all our friends and family that has internet access. It might take me awhile to get all the information on here, but give me time! Anyone should be able to see this site - so if I miss sending it to someone, feel free to forward it on. Most recently, we took a trip to Denver to a specialist at The Childrens Hospital. Her name is Dr. Ellen Elias and she specializes in development and genetics. She explained alot to us about all the past tests that have been done and as she took all the information about Torah, she said that she has her work cut out for her now that she needs to find out what syndrome or dissorder Torah has. Dr. Elias pulled up Torah's MRI that was done back in September 07' and showed us what was really going on. I am going to try and see if she can send me a picture of the MRI of Torah's brain and also the radiology report (only because alot was said and my brain is not big enough to hold all the information given). The big part that is compicating things right now is her Corpus Callosum. Dr. Elias told us that it is completely missing. After getting on the computer and doing a little bit of research - I found that it is called "agenesis of the corpus callosum". Here is a site that you can go to to read more about ACC - http://en.wikipedia.org/wiki/Agenesis_of_the_corpus_callosum
The site will go over diagnosis, cause, signs, symptoms, syndomes and conditions, treatment, prognosis, and special cases. There is alot of other things going on in Torah's brian that I need to do more research on - but I will post things as I find them.
